Info on MRKH
5
I can discuss, provide links to info and support groups, and just be there for a parent or person diagnosed with MRKH. 1 in every 5 thousand genetic females are born with MRKH and yet hardly anyone knows about this congenital condition. Females having this condition typically have an extremely small or non existent uterus, possibly a working ovary, no or minimal vagina, renal issues (typically having one kidney abnormally shaped and located atypical in the abdominal wall)...most females are diagnosed between 15-19 years old and face years of painful treatment if they decide to create a vagina and a lifetime of emotional issues.
I walked into a doctor’s office for an annual check up and was shocked to find out that my incredibly healthy child had this diagnosis. I was lucky in that an adolescent gynecologist with experience was attending. I knew nothing about this condition and am weathering the emotional/psychological issues with an amazingly perfect 15yr old. I would love to share what knowledge I’ve gained, options, support, and just be a listening ear.
Training & Qualifications
I’m a mother of 4 crazy amazing kids. We have mental illness, transgender adoption/life issues, and now congenital issues. I may not be a therapist but I’m an incredibly open ear and understand life with children in a somewhat alternative way. I love my children. I’ve cried, mourned, ranted, raved, and sought a huge amount of guidance. Don’t expect socially acceptable advice from me...sometimes you need to take a sledgehammer to a pile of rocks to work things out. I’ll let you know where sledgehammers are on sale!
Availability & Preferences
Primarily evenings/ late night. I work 3rd shift.